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به گزارش خبرگزاری فارس، آیت‌الله هاشمی رفسنجانی، در دیدار اعضای هیأت امنا، مدیران، کارکنان و خیّرین بنیاد امور بیماری‌های خاص با اشاره به روند شکل‌گیری این بنیاد، نبود متولی ویژه برای بیمارانی چون هموفیلی، تالاسمی و سایر بیماری‌های خاص را مهمترین دلیل تشکیل این مرکز خواند و گفت: امروز پس از دو دهه از تشکیل بنیاد امور بیماری‌های خاص، وقتی به دستاوردها، امکانات و خدمات گسترده‌ای که به بیماران و نیازمندان ارائه می‌شود، نگاه می‌کنیم، تحسین و قدردانی هر انسانی را برمی‌انگیزد.